Thursday, July 26, 2012

Happy Birthday to me! Wonderful present changing my fertility future!

SO, in the midst of my crippling depression over the news that my perinatologist gave me that I could never recover my heart function enough to safely carry a pregnancy, my cardiologist finally called to update me.  He was in a panic as he'd noticed I was scheduled for a tubal ligation (which I'd downgraded to an IUD insertion).   APPARENTLY, my condition may  not be as dire as my perinatologist believed.

YES, if I were to get pregnant in my current condition it would be quite deadly to me.

BUT, with the new Melody Valve procedure , the cardiologist in Houston that specializes in adults with congenital heart defects believes that I could recover enough to be able to carry a pregnancy.  I can get re-evaluated 4-6 weeks after and if my heart function improves by as little as 20-30% it could be safe for me to carry a pregnancy. 

Hurrah for wonderful cardiologists.

BOOOO to alarmist perinatologists. I'm definitely ONLY going with a perinatologist certified to work with adults with congenital heart conditions should I be blessed enough to safely carry a pregnancy to term. 

Sunday, July 22, 2012

Life is unfair rant...


First, I want to thank everyone for their lovely comments in my last post. I'm still absorbing a lot of this and ignoring it most of the time. But I needed to get some thoughts out.

Since my docs told me with finality that I cannot carry a pregnancy, I've had varying emotions. Most of the time I can manage to not think about it, but the last few days...if I'm not "busy" I sometimes feel this suffocating despair---usually I am able to keep it at bay, but it just leaves me feeling numb. I can't really feel, because if I feel, I will feel too much.

Wednesday, July 18, 2012

It's the end of my world as I know it...

My TTC world that is.  So, after my annual visit to my cardiologist, they found a problem. I had a "diagnostic procedure" and am still waiting for the official update from my cardiologist.

I had a visit with the perinatologist before the procedure, and got disheartening news that he believed with my current condition that they would not advise pregnancy for me as it could raise my mortality rate to 50%.

I had hoped the initial summary I got from my cardiologist on the day of the procedure meant that it would be possible for me to attempt pregnancy later, but after my last appointment with the perinatologist, it seems that the results show conclusively that my mortality rate would be at least 50% if I were to get pregnant, as well as a high possibility of damage/loss to the fetus and if further complications my mortality rate would drop below 50%.

Motherhood Wanted approved!

Motherhood Wanted approved!
Diana Farrell, MA

design

Motherhood Wanted approved!